Investigator Resources for Myotonic Dystrophy
The Myotonic Dystrophy Foundation (MDF) is committed to our mission to lead and mobilize resources toward effective management, treatment and ultimately a cure for myotonic dystrophy through education, advocacy and research.
MDF Research Grants
As part of our mission, MDF raises funds for scientific inquiry and clinical research into the cause and treatment of this complex disease.
2007 Grantmaking
2007 was MDF’s first year of grantmaking activity. In 2007, MDF chose to acknowledge two young investigators and present one lifetime achievement award to researchers working in the field of myotonic dystrophy research.
Learn more about our grantmaking efforts in 2007.
2008 Grantmaking
In our initial efforts to further the understanding of myotonic dystrophy and to find a satisfactory treatment or cure for this multi-systemic disorder, the MDF is offering two postdoctoral research fellowship awards in 2008. These awards will support new and innovative studies that are relevant to the pathogenesis of DM, disease progression, best practices in clinical management of the disorder, and therapeutic and diagnostic development for myotonic dystrophy. Applicants must be eligible for a postdoctoral position and have an interest in research in the field of myotonic dystrophy. They must have completed their degree requirements for an MD, PhD or DO prior to award activation in January 2009.
Learn about MDF’s 2008 fellowship awards or download the guideline and application.and addendum.
DM Patient Registry
In 2000, the National Registry for Myotonic Dystrophy (DM) and Facioscapilohumeral Muscular Dystrophy (FSHD) was developed at the University of Rochester in Rochester, New York with funding from the National Institutes of Health (NIH). It was developed to facilitate research by making available to investigators anonymous data on Registry members, by helping investigators recruit subjects into their clinical studies, and by providing educational materials to patients and family members. By participating in research, patients can assist in finding answers to questions related to causes and symptoms of the disease in order to develop better treatments - and hopefully, one day, a cure for DM (and FSHD). Learn more about how to use the registry in your research.