Myotonic Dystrophy Support by Location
Find Support Near You
The following list shows support and resources funded from many different organizations by location. If you have a support group that you would like to add to this list, email us at support@myotonic.com. You can also post your support group meetings on our event calendar on our community site.
UNITED STATES
California:
- Northern: Email Leslie Krongold: elkrong@yahoo.com
- Central: Email Corey Glick: mdaasgsupport@aol.com
- Southern: Email Alice Gunderson: mdaasgsupport@aol.com
Georgia:
- Email Shannon Lord: shannon.lord@myotonic.com
Indiana:
- Email Suzette Schmaltz: MDAASGsupport@aol.com
Oregon:
- Email Barry Wald: barry.wald@hotmail.com
Utah:
- Email Ann Woodbury: MDAASGsupport@aol.com
Other US Based Online Support Group Resources:
- Myotonic Dystrophy Foundation Community Site
- Muscular Dystrophy Association (MDA) Support Information
- Muscular Dystrophy Association (MDA) Weekly Chat
- Congenital Myotonic Dystrophy DM1 discussion group for patients and parents
- DM2 international support/advocacy group. This group requires registration and includes a forum for moderated discussion.
- DM3 international support/advocacy group. This group is for patients with clinical symptoms of myotonic dystrophy who have received negative gene tests results for both DM1 and DM2, and are now suspected to have DM3 or DM4.
CANADA
Toronto and surrounding areas
ENGLAND
- Myotonic Dystrophy Support Group
Phone: 0115 987 586