Join the Myotonic Dystrophy Foundation Community

Sign Up Today!

We encourage you to Join the MDF community.  Each individual or household signing up receives a 'Family Welcome Pack' that includes Dr. Peter Harper's book Myotonic Dystrophy: The Facts, printed materials from the MDF Web site, a medical alert wallet card and medical history sheet, and "Cure Myotonic Dystrophy" bracelets and MDF pens. You can also ask to receive our quarterly newsletter that includes articles on myotonic dystrophy by respected authors as well as updates on the latest medical advances, progress of the MDF, and much more. 

Please fill out the form below and click submit.

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  • I would like to receive information from the Myotonic Dystrophy Foundation, including our quarterly newsletter. 
  •   Send information by email and postal mail
  •   Send information by email only
  • Send information by postal mail only
  •   Do not send any information
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  • I would like to receive a "Family Welcome Pack" which includes detailed medical information about myotonic dystrophy including two books on DM, an emergency alert card, medical history sheet and MDF bracelets and pens. (Also available for Therapy Providers and Healthcare Professionals).
  •   Yes, send me a complete family welcome pack
  •    Yes, send me only parts of the welcome pack that are important to me (specify below)
  • Send me (The Facts, MDF printed booklet, DM book, alert cards, medical history sheets, bracelets, pens, etc. - please specify the quantity)
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  • I would like to sign up to volunteer my time with the MDF
  •   Yes, add me to your list of volunteers for the MDF
  • Volunteer Preferences (list any preferences you have for volunteer work such as event planning, event volunteer, administrative assistant, support group leader, other, not sure, etc.)
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  • Please tell us about your relationship with myotonc dystrophy
  • Other (please spedify below)
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  • How did you learn about the Myotonic Dystrophy Foundation?
  • Other (please specify below)
  • Other Comments (add any other comments for the MDF staff)